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The Lutheran pastor believes that he's been able to
reach more people than if he had not had cancer.
Tim Townsend, St.
Louis Post-Dispatch - The Rev. Scott Schmieding
sat in an examination room at the MD Anderson Cancer
Center in Houston 13 years ago as a surgeon examined a
malignant tumor in the center of his tongue.
The tumor was spreading rapidly, the doctor told him,
and most or all of the preacher's tongue would need to
be removed. He might never be able to swallow on his
own. His speech would likely be unintelligible.
In that moment, Schmieding was not afraid of death or
the physical ordeal that he faced. But he wondered about
his calling if he survived: How could he spread the word
of God if he couldn't speak?
Schmieding asked God to either make him whole or take
him to heaven. Ultimately, God would do neither.
Schmieding survived the cancer, but he lost his entire
tongue. In the years that followed, he retrained himself
to speak using a special retainer and a muscle from his
abdomen that surgeons transplanted into his mouth.
Two months ago Schmieding took on a new ministry as
pastor of Immanuel Lutheran Church, a congregation of
the Lutheran Church-Missouri Synod. Though his speech is
difficult to follow at times, the awkwardness of his
speech has, in fact, brought more power to his words,
parishioners say.
Jana Leppien, who was on the Immanuel selection
committee, recalled how one person put it best: "If
someone is willing to work that hard to speak, after
going through what he went through, I'm going to work
twice as hard to listen.”
Schmieding had never smoked or chewed tobacco and he had
no family history of cancer. But in 1997, five years
after his ordination, he noticed a sore in the back of
his tongue. In an 11-hour operation, surgeons in Houston
sliced open Schmieding's neck from ear to ear and
removed his tongue through his throat. Then, they
reconstructed the cavity in his mouth with a muscle from
his abdomen.
During rehabilitation, he suffered from blisters in his
mouth from intense radiation, making his speech therapy
sessions agony. He calls it "the most painful part of
the entire ordeal.”
For eight months, he had to breathe through a hole in
his neck, and he ate through a feeding tube. Doctors
told Schmieding they feared he would choke to death if
he tried to swallow food, and that the feeding tube
might be permanent.
The loss of his tongue meant Schmieding permanently lost
almost all of his sense of taste. Radiation treatments
to his head eliminated the ability to produce saliva.
When he did learn to swallow, it was with the help of
gravity to push both solids and liquids—with a quick
toss of the head backwards—to the back of his throat.
He had to learn how to replace the sounds of consonants
in his speech—making the "T" sound, for instance, by
shooting air at his retainer, which acts like a
megaphone and replicates the traditional sound of the
tip of the tongue touching the roof of the mouth.
Having survived surgery and radiation, Schmieding was
determined to return to parish life. His first public
act as a pastor after his ordeal was to give a sermon at
his former church in Baton Rouge and celebrate the
baptism of his newborn son.
Despite his zeal, Schmieding did have some misgivings.
He confided to his speech therapist: What if
parishioners could only understand half of what he said
during a sermon?
Her reply? "Isn't that true with most pastors?" he
recalled, laughing.
Schmieding says now that he never asked why he was
struck with tongue cancer, but for what purpose. In the
13 years since his diagnosis, he said, he found the
answer.
"I have become an expert at adversity," he said, noting
that he also lived through five major hurricanes in
Louisiana. "I know what people are feeling when they
face trials and tragedy."
Schmieding was among some 60 candidates considered by
the church, and the search committee knew of his
challenges when they invited him to visit.
"After about five minutes, we began listening to the
content of what he said, rather than how he said it,"
said Alaina Kleinbeck, Immanuel's director of Christian
education and a member of the search committee.
"The fact that some of his words were a little more
difficult to make out didn't matter.”
After some initial hesitation among some members,
Immanuel offered the job to Schmieding and he arrived
last fall. So far, the congregation has been supportive
and has benefited from Schmieding's message of
perseverance, Kleinbeck said.
"So many people have big hurts in their lives, so to
have someone stand up there and reveal how they almost
lost their vocation in life—that's inspiring for
people," she said.
Schmieding believes strongly that he's been able to
reach more people without a tongue than he would have
had he not had cancer.
"The history of the Bible is the story of God using
imperfect people for his perfect purposes," he said.
"I'm just one in a very long line of imperfect people
being used by God.”
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